Hidden struggles in cancer treatment: A brief taste of loss

Authors

  • Olubukola Ayodele University Hospitals of Leicester NHS Trust, Leicester, UK

DOI:

https://doi.org/10.51496/jogm.v5.337

Keywords:

lived experience, oncology, side effects, quality of life, shared decision-making, patient-centred care

Abstract

This reflective article examines a brief personal experience of taste loss to illuminate the often-overlooked challenges encountered by individuals undergoing cancer treatment. Employing both personal narrative and patient case studies, this discussion highlights the limitations inherent in toxicity grading systems, underscores discrepancies between clinical perspectives and patient experiences, and emphasises the importance of shared decision-making processes. The piece contends that extended survival is valuable only when accompanied by dignity, enjoyment, and a sense of personal meaning.

Metrics

Metrics Loading ...

References

Basch E, Iasonos A, McDonough T, Barz A, Culkin A, Kris MG, et al. Patient versus clinician symptom reporting using the National Cancer Institute common terminology criteria for adverse events: results of a questionnaire-based study. Lancet Oncol 2006; 7(11): 903–9. doi: 10.1016/S1470-2045(06)70910-X DOI: https://doi.org/10.1016/S1470-2045(06)70910-X

Say RE, Thomson R. The importance of patient preferences in treatment decisions: challenges for doctors. BMJ 2003; 327(7414): 542–5. doi: 10.1136/bmj.327.7414.542 DOI: https://doi.org/10.1136/bmj.327.7414.542

Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, et al. Shared decision making: a model for clinical practice. J Gen Intern Med 2012; 27(10): 1361–7. doi: 10.1007/s11606-012-2077-6 DOI: https://doi.org/10.1007/s11606-012-2077-6

Basch E, Reeve BB, Mitchell SA, Clauser SB, Minasian LM, Dueck AC, et al. Development of the National Cancer Institute’s patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE). J Natl Cancer Inst 2014; 106(9): dju244. doi: 10.1093/jnci/dju244 DOI: https://doi.org/10.1093/jnci/dju244

Published

22-09-2025

How to Cite

Ayodele, O. (2025). Hidden struggles in cancer treatment: A brief taste of loss. Journal of Global Medicine, 5(1), e337. https://doi.org/10.51496/jogm.v5.337

Issue

Section

Lived Experience

Categories